An emotionally, compelling story is a powerful tool and with great power comes great responsibility.
Failure to Thrive Blog
The sight of my family so full of joy and enjoying each others company warmed my heart and offered a reprieve from the hustle and bustle of our life. It was a school night and we were out later than we should have been but we didn’t rush. Instead we took the time to enjoy […]
But apparently the programs developed to help kids with special needs only help those kids who have diagnoses that are in vogue—autism, sorry not really a diagnosis insurance companies or the government recognize; inability to speak—sorry, it’s not like you can’t see or hear so you should be fine in life; medically involved without a specific diagnosis—sorry we need your medical issues to be wrapped up with a bow and have a name.
When I entered the world of IFSPs (baby IEPs), pediatric specialists, feeding tubes, compression vests, weighted blankets and chew tubes I was forced to accept that my life plan was going to change. I mean really how can one manage the needs of Caroline and plot for world domination simultaneously? I needed to learn how to manage my expectations.
We should all try to see ourselves through the eyes of our kids as it offers a true reflection of who we are, for good or bad.